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Showing posts from July, 2016

I'm With Her

I wish I were at the Democratic National Convention. What a great time it looks to me. I surprised myself by being transfixed and watching every single night of it! I had already decided to support Hilary Clinton before the DNC, but watching it in it's entireity solidified my choice. I'm also more fearful than ever that our country is in real trouble if Donald Trump comes to power. I pray the people of the United States of America get wise And vote for Hilary Clinton.

Gleason Rocks!

19 1 Do yourself a favor and watch the movie, Gleason: Diary of a Saint. While the subject matter is difficult, a sports hero is diagnosed with a terminal illness, the family deals with their new reality with love, humor,  and purpose. Six weeks after his diagnosis, his wife delivers a diagnosis of her own, she's pregnant. What ensues is a unique all access pass into Steve and Michel's life. If you're offended by off-color humor, this is not your movie.  I loved every piece of this flick! I found it unflinchingly honest. (Check Michel's look of horror when Steve's coordination starts to go following a triathlon or the communal nature of Steve's bathroom routine.) And as a fellow PALS (person with ALS), I garnered a few tips on how to set up my communication device for my weakening neck muscles. I also must find out where Steve got his leg pillows. Rather than going softly into that sweet night, Steve and Michel start their Gleason Initiative Foundation, whic
It's been a long time since I've blogged with any regularity, not because I haven't wanted to, but because my augmentative and alternate communication device (AAC) has been on the blink, so to speak.
I lost two superior caregivers, yesterday. They've moved on in their journey. They've moved on in their journey. They've moved on in their journey. I'm bummed.