Skip to main content

Birthday Detritus

124Glittering Birthday tiara, emblazoned with "Birthday Bitch", sent forth by my surviving sister, sits askew the lampshade. A half eaten bag of tortilla chips remains on the table, dyed navy and green, in honor of the Seattle Seahawks. Perfuming the air, a squat, clear, vase filled with short-cut, long-stemmed, white and red roses.

Birthday cards litter my counter and tabletop, wishing me a  "Happy Birthday" in varying shades of funny. One tells me my sister "squeezed a unicorn to make me a rainbow" and there sits a rainbow-hued pile of poop. Another tells me a "Birthday Hug is Incoming" as a grey kitten flies through the air, from my husband. Still another, tells me that my mother "was going to get a flash mob together to do a birthday dance"; when you open the card, it belts out "Everybody Dance Now" and a little man vibrating (dancing).

One good musical card deserves another and I have one left from last year from my sister, Renee.  The last birthday card my baby sister will ever get me and it's a good one. Pink and furry with big eyes and it sings about Birthday cupcakes.  One day it will stop singing but it sang for me this year.


Comments

Popular posts from this blog

Kate

I think about my friend, Kate Struby, who died from this horrible disease in 2013. She lived here at Bailey Boushay House before I did. I reached out to Kate online through FaceBook because I loved her photograph with her head thrown back in laughter. I also loved her posts. I guess I just loved her spirit. I got to finally meet her one month before she died. I happened to be at the University of Washington Medical Center for my quarterly appointment when I saw her FaceBook post. She was awake and in the medical ICU. She was a mere few floors down. I would not be stopped. Relativeor no, I would meet my FaceBook friend. Thank God I did. I rolled into the room to find a beautiful, ethere.al woman flanked by two friends. Although it was an impromtu visit, she said she knew me immediately.I was in awe of her with her fiery spirit despite the ravages of our shared disease. She, unable to lift even a finger, lifted my spirit.

Immersion Therapy

Please excuse my selfish absence from posting to my blog. I wish I could say that I've been out diligently finding a cure for ALS, or tirelessly working to fund research, or hunger-striking to bring public attention to beacon the cruelty of not having access to care facilities geared specifically to the specialized needs of the ALS patient. Alas, I have been binge-watching Scandel, The 100, and binge-listening to audiobooks. I'm currently enamored of mystery and thrillers by Chelsea Cain and Lisa Unger. I cannot do a Helluva lot these days but I can still waste time. ALS ought to have some perks. I can immerse myself in completely in entirely new situations, raise my excitement level and learn something new to me.

Tuesday

Tuesday is shaping up to be my best day of the week. Every day holds the requisite eating, changing, television, and napping. But Tuesday, I got a glorious, hot bath in a handicap-accessible bathtub with my Angela and Lisa, reorganized my shower caddy with my Lisa, read "The White Album" by Joan Didion with my Lindsey, "supervised" doughnut-making and sampled same with my Sandra among others, and listened to Ryan Feng play classical piano. A new book fell into my lap today. Of course, I mean that figuratively. "Play It As It Lays" by Joan Didion was just laying on top of the informal Bailey Boushay House library cart, so I borrowed it. .Guess what we'll be reading? I feel very blessed!