Flop goes my head, muscles have given up the ghost in the left side of my neck. Another day in the life of the ALS patient. I'm not sniveling so much as documenting for posterity.
Losing my neck muscles is problematic in the sense that it's difficult for caregivers to place my head properly. Additionally, caregivers operate on old information; they don't really get the progressive nature of my disease. Consequently, my head doesn't get properly supported.
I'm struggling with my toes curling as my tendons contract, my muscles have died. It was so much better when my husband curled my toes!
I may have to resort to wearing glamorous moon boots lined in genuine simulated sheepskin. I spend 99% of my time lying or laying in bed. As a result, the skin at my heels is getting sensitive to pressure and my left knee and thigh are in near constant spasm. Both conditions are painful.
It's winter in the Pacific Northwest of the United States, with winter comes dry humidity. And I'm suffering the effects. I have the dryest skin of my life and a bad case of eldersnow. What is eldersnow? I dare say you can figure it out. With it, I have a worsening scalp issue, itching and burning to the point that I suspected lice. I'm delighted to report that I don't have that condition. And I have a brand new prescription for dandruff shampoo. Woo-hoo!
Losing my neck muscles is problematic in the sense that it's difficult for caregivers to place my head properly. Additionally, caregivers operate on old information; they don't really get the progressive nature of my disease. Consequently, my head doesn't get properly supported.
I'm struggling with my toes curling as my tendons contract, my muscles have died. It was so much better when my husband curled my toes!
I may have to resort to wearing glamorous moon boots lined in genuine simulated sheepskin. I spend 99% of my time lying or laying in bed. As a result, the skin at my heels is getting sensitive to pressure and my left knee and thigh are in near constant spasm. Both conditions are painful.
It's winter in the Pacific Northwest of the United States, with winter comes dry humidity. And I'm suffering the effects. I have the dryest skin of my life and a bad case of eldersnow. What is eldersnow? I dare say you can figure it out. With it, I have a worsening scalp issue, itching and burning to the point that I suspected lice. I'm delighted to report that I don't have that condition. And I have a brand new prescription for dandruff shampoo. Woo-hoo!
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