Skip to main content

Another Chapter: Occupational Disease

March brought serious surprises to my life. Although I haven't mentioned it, I've been struggling with an increasing disability.  Since late last year, I've been plagued with an unstable spinal condition. What started off as a troublesome pain in my neck (October/November) has deteriorated into diminishing control over the fingers in my right hand (January) and arm (February).  This condition left me without any other option but to file a claim with our state's department of Labor and Industries. (March).  The tenacity of this condition coupled with the state's lethargy to diagnose and treat my condition, spurred my employer into cutting me loose (April).

Unfortunately, because of this relentless deterioration, I've had to give up many of my preferred activities and pastimes: personal computing (blogging, social networking, learning new programs). Digital photography (capturing, uploading, captioning, classifying, and printing), knitting and crocheting, pleasure-cooking, and motorcycle riding.

While I have taken the time and put forth the energy to create this post, I do so with the knowledge of a "price to pay" when I finish.  The deterioration of my fine motor skills, mean many mistakes that I must correct prior to post thus a few paragraphs mean many more keystrokes than usual.  Sustained effort will result in a flare-up of muscle spasming, involuntary finger twitching and triggering, and could culminate into a tension headache.

Be advised that any posts will be limited and infrequent.

Comments

Popular posts from this blog

Kate

I think about my friend, Kate Struby, who died from this horrible disease in 2013. She lived here at Bailey Boushay House before I did. I reached out to Kate online through FaceBook because I loved her photograph with her head thrown back in laughter. I also loved her posts. I guess I just loved her spirit. I got to finally meet her one month before she died. I happened to be at the University of Washington Medical Center for my quarterly appointment when I saw her FaceBook post. She was awake and in the medical ICU. She was a mere few floors down. I would not be stopped. Relativeor no, I would meet my FaceBook friend. Thank God I did. I rolled into the room to find a beautiful, ethere.al woman flanked by two friends. Although it was an impromtu visit, she said she knew me immediately.I was in awe of her with her fiery spirit despite the ravages of our shared disease. She, unable to lift even a finger, lifted my spirit.

Immersion Therapy

Please excuse my selfish absence from posting to my blog. I wish I could say that I've been out diligently finding a cure for ALS, or tirelessly working to fund research, or hunger-striking to bring public attention to beacon the cruelty of not having access to care facilities geared specifically to the specialized needs of the ALS patient. Alas, I have been binge-watching Scandel, The 100, and binge-listening to audiobooks. I'm currently enamored of mystery and thrillers by Chelsea Cain and Lisa Unger. I cannot do a Helluva lot these days but I can still waste time. ALS ought to have some perks. I can immerse myself in completely in entirely new situations, raise my excitement level and learn something new to me.

Tuesday

Tuesday is shaping up to be my best day of the week. Every day holds the requisite eating, changing, television, and napping. But Tuesday, I got a glorious, hot bath in a handicap-accessible bathtub with my Angela and Lisa, reorganized my shower caddy with my Lisa, read "The White Album" by Joan Didion with my Lindsey, "supervised" doughnut-making and sampled same with my Sandra among others, and listened to Ryan Feng play classical piano. A new book fell into my lap today. Of course, I mean that figuratively. "Play It As It Lays" by Joan Didion was just laying on top of the informal Bailey Boushay House library cart, so I borrowed it. .Guess what we'll be reading? I feel very blessed!