I'm so alone. My husband keeps showing me so. Today, he came to the Seattle MOHAI and never gave me the opportunity to join him. This, in itself, wouldn't be so bad, but consider this:
He drove 20+ miles to go to this museum; he knew I wanted to go to that particular museum, since we missed opening hours last spring. It's located close to the hospice house I'm stowed at. We own a wheelchair van.
He doesn't include me in any family events, despite close proximity, the ability to transport, and my desire to attend. He assured me that he would keep me involved in life, promising to position my hospital bed to the living room (in our home).
He's off work for over ten weeks and yet, I don't ever see him before 4 pm. He wanted me to agree how well he's done, visiting me. And, yet, I rarely see the light of day, the seasons change, or breathe fresh air .
This is not love. Ours, is the relationship people are grateful, they don't have.
Why be angry about ALS?
He drove 20+ miles to go to this museum; he knew I wanted to go to that particular museum, since we missed opening hours last spring. It's located close to the hospice house I'm stowed at. We own a wheelchair van.
He doesn't include me in any family events, despite close proximity, the ability to transport, and my desire to attend. He assured me that he would keep me involved in life, promising to position my hospital bed to the living room (in our home).
He's off work for over ten weeks and yet, I don't ever see him before 4 pm. He wanted me to agree how well he's done, visiting me. And, yet, I rarely see the light of day, the seasons change, or breathe fresh air .
This is not love. Ours, is the relationship people are grateful, they don't have.
Why be angry about ALS?
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