I'm disappointed! Last night, or should I say this morning, I composed an email complaint regarding two new hires. Both of them have me worried for my safety.
One, a nurse, tried moving me on her own and ended up leaving me flat on my back, with a pillow on top of me, no call button, and she closed the door. All of which is a recipe for death for an ALS patient with my issues at this stage of the game. Luckily, I did not die and was found by a pair of PCT's, breathless, angry, and shaken.
The other is a PCT with attitude issues and no desire to learn the idiosyncrasies of caring for an ALS patient. I've been "helped" by her three times now and I read her loud and clear. She is not cut out for the moving target of ALS symptoms. She's already gotten angry with me and beat feet out of my room when she should've been doing her job, learning how to care for an ALS patient. I don't need a caregiver who takes training, personally and is quick to anger and abandons me when I need help.
Ugh! Not feeling supported (protected) by Bailey Boushay House management just now.
One, a nurse, tried moving me on her own and ended up leaving me flat on my back, with a pillow on top of me, no call button, and she closed the door. All of which is a recipe for death for an ALS patient with my issues at this stage of the game. Luckily, I did not die and was found by a pair of PCT's, breathless, angry, and shaken.
The other is a PCT with attitude issues and no desire to learn the idiosyncrasies of caring for an ALS patient. I've been "helped" by her three times now and I read her loud and clear. She is not cut out for the moving target of ALS symptoms. She's already gotten angry with me and beat feet out of my room when she should've been doing her job, learning how to care for an ALS patient. I don't need a caregiver who takes training, personally and is quick to anger and abandons me when I need help.
Ugh! Not feeling supported (protected) by Bailey Boushay House management just now.
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