A nurse put my bed at 90-degrees without the appropriate pillows stacked under my arms to support my torso musculature. Then she badgered me to tell her what to do. I cannot tell them what to do when I'm suffocating.
Everybody thinks they know the problem and solution. And yet, none of them have had ALS! Funny how they football the whole issue back on me. In psychology circles, they call that behavior "blaming the victim".
What's worse about this is that there were additional participants. Another nurse and two PCT's. Their traditional approach to care is not working with me. It's harming me. They are treating very human reactions to my safety as a behavioral problem.
They all gathered around my bed while I'm struggling for air, telling me how they want to keep me safe when, in fact, they are watching me die. It's laughable if it weren't so damn tragic!
I was reported as "trying to throw myself out of bed", when in fact, I'm trying to scoot over and position myself to grab a breath. And they keep raising up the head of the bed or they block my progress with their hands, bodies, and pillows. They try everything EXCEPT the one thing that will guaranteed calm me down. Give me air!
Everybody thinks they know the problem and solution. And yet, none of them have had ALS! Funny how they football the whole issue back on me. In psychology circles, they call that behavior "blaming the victim".
What's worse about this is that there were additional participants. Another nurse and two PCT's. Their traditional approach to care is not working with me. It's harming me. They are treating very human reactions to my safety as a behavioral problem.
They all gathered around my bed while I'm struggling for air, telling me how they want to keep me safe when, in fact, they are watching me die. It's laughable if it weren't so damn tragic!
I was reported as "trying to throw myself out of bed", when in fact, I'm trying to scoot over and position myself to grab a breath. And they keep raising up the head of the bed or they block my progress with their hands, bodies, and pillows. They try everything EXCEPT the one thing that will guaranteed calm me down. Give me air!
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