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Clinic Day

This is the day. I cannot hardly believe it's that time again already.  Sometimes, I wonder why I continue to go to these quarterly appointments. I mean the news is never good. It's a recording of measurement declines. ALS has two key measures, FVC (forced vital capacity) and the FRS (the meaning escapes me but it's a questionaire that gives a score that is a numerical representation of how helpless we've gotten. Kind of a drag.

But not really. Oddly enough, I look forward to these quarterly appointments. The ALS clinic at the University of Washington is such a positive place. We, the patients, are treated with the respect that we used to get when we were whole, non-disabled persons. (you know what I mean ). I touch base with a caring team of doctors and nurses who know my history and really know this rare and deadly disease.

Well, the planets didn't align or maybe it was just a wild day of traffic after the storm of the season. Either way, I missed my appointment. Will try again next month.
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Location: Federal Way, WA, USA

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