IntrinsicTina

I have a hole in my chest. Located right between my breasts. Yesterday, my husband got an eyeful, which he didn't ever count on seeing. I had an appointment with a gut doc, otherwise known as a gastroenterologist, to get a new PEG tube installed. What an eyeopener. I was already anxious, sweating my previous visit where the doctor ripped the still-inflated PEG from my unmedicated chest, sending me into shock. I'm happy to report this visit went substantially better. My caregivers told me that my Mic-Key style PEG, (percutaneous endoscopic gastronomy), or simply, feeding tube, closing flap was breaking off and likely needed replacement. They feared they wouldn't be able to use it to administer my liquids and medications. Replacement of feeding tubes require a doctor's visit, not an easy task for an ALS patient in hospice; I require a ride in a cabulance and an attendant, familiar with myself, my particular needs, my communication system and it's idiosyncrasies,...