My loss of energy is a big problem all of a sudden. I am exhausted so easily. Just trying to get through a blog entry is a test of my endurance. I have many entries started then abandoned due to interuptive naps, taking medications, cough assist breaks, or those pesky meal times. I also suffer technical difficulties, such as when I write out a paragraph then "eye gaze" cancel instead of insert text.
People are reading my blog! I cannot express my gratitude enough. My heart is soaring! Before I got ALS, it was a minor interest amongst many varied interests. Today, I am unable to physically participate in many of my prior interests, like motorcycling, photography, knitting and other handicrafts, hiking, traveling, painting, drawing, going to the gym, working in the garden, doing housework, canning, and cooking gourmet or ethnic foods. Therefore, I am more focused on the ones that are most accessible to me, such as reading via audiobook or e-book, television, movies, meditation, music appreciation, and writing. Like the blind man who's sense of hearing and smell is heightened, I'd like to think my crippled body has made me more attuned to things more on the spiritual and sensual level. Initially, when some members of my family read my blog, they chose to focus on what they viewed as negative. The feedback I got was harsh and personally critical. .I was told that I was ...
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