My relationship with my augmentative alternative communication (aac) device is love/hate. I love that I have an alternative form of communication. I see so many people who have lost the ability to speak due to stroke or TBI (traumatic brain injury) and their communication is reduced to head nods or unintelligible sounds. They are so frustrated. And that single word doesn't begin to cover the myriad of emotions that one feels locked within their body. I hate the pace of the communication. It's molasses slow. Even the patience of a saint would be tried! Caregivers and family often forget that I need time to respond. That I'm not ignoring them. I hate that it is not more predictive. I remember how quick I could type and respond pre-illness. And this is painfully slower. Also hate how slow the processor is. For $22,000 one would think you would get a speedy little processor, predictive text, lots of storage, and MS Word, MS Outlook... I mean really!
Occasionally, we are seized with a rebellion so sickening that we simply won't pray. When these things happen we must not think too ill of ourselves. We should simply resume prayer as soon as we can, doing what we know to be good for us. -- TWELVE STEPS AND TWELVE TRADITIONS, page 105 Gee, I could have saved myself years of self-reproach by taking it easy on myself. "Try" as I might, I never could make prayer, in the traditional sense, a daily occurrence for stretches longer than a month. I had good intentions but inevitably, I'd be running late and forget. Or worse, I'd get a big, fat bout of attitude about not getting my wishes (the permanent position at the Gates Foundation, being fired from my last job when my health deteriorated, the cancellation of my Panama Canal cruise, and the various abandonments I experienced following my ALS diagnosis) and off I'd go, cursing my Higher Power, turning my back, isolating, and wishing I were dead (actually, I wa...
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