My relationship with my augmentative alternative communication (aac) device is love/hate. I love that I have an alternative form of communication. I see so many people who have lost the ability to speak due to stroke or TBI (traumatic brain injury) and their communication is reduced to head nods or unintelligible sounds. They are so frustrated. And that single word doesn't begin to cover the myriad of emotions that one feels locked within their body. I hate the pace of the communication. It's molasses slow. Even the patience of a saint would be tried! Caregivers and family often forget that I need time to respond. That I'm not ignoring them. I hate that it is not more predictive. I remember how quick I could type and respond pre-illness. And this is painfully slower. Also hate how slow the processor is. For $22,000 one would think you would get a speedy little processor, predictive text, lots of storage, and MS Word, MS Outlook... I mean really!
Fed up. Sick of hearing, "I'm sorry." Apologies don't erase the pain you inflict on me. You pull my pubic hair. Your nitrile gloves pull the hair from my head. Not once in a while but day in and day out. You turn me in a manner that suits you rather than in a manner that doesn't stress my body. Why won't you use the pad and sheet to turn me as one unit? Instead, you allow my body to twist as you hold me one-handed. How good you are at your job. What part of "my muscles are dying" don't you understand?
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