I cannot believe the end has come so quickly. I was stuck in a wholly inadequate nursing home for damn near a year. It may as well been prison. The management was not interested in my well being as much as in the conformity of their populace. They blithely took away any small freedoms I had in the name of safety. I went from farm fresh eggs to institutional crap. From organic juicing to the cheapest watery flavored facsimiles. The nastiest blandest toughest excuse of food I ever had the misfortune to taste and I grew up on commodities.
When I was physically able to manuever my power chair, they slowed it to a crawl. Then they took it away altogether, ignorant of the medical necessity of it. They were ignorant of the PseudoBulbar Affect (PBA) or Frontotemporal Disease (FTD) I was suffering from which governed my emotions. Instead, they would treat me as a child and exert discipline upon me. Wholly inappropriate. I needed treatment and understanding. There was no real attempt to learn my unique and rare disease rather I was expected to fit into their paradigm.
For a "Skilled Nursing Facility", it felt more like a weigh station to death. I witnessed no interest in disability accommodation. The only public computer sat broken for nine months then was kept off to the side, immobile, inaccessible to most of the populace. The front desk had high counters inaccessible to the populace in wheelchairs. No easy coffee service for the wheelchair-bound, either. I mean, how difficult is it to make a low counter top to accommodate the wheelchair-bound?!
When I was physically able to manuever my power chair, they slowed it to a crawl. Then they took it away altogether, ignorant of the medical necessity of it. They were ignorant of the PseudoBulbar Affect (PBA) or Frontotemporal Disease (FTD) I was suffering from which governed my emotions. Instead, they would treat me as a child and exert discipline upon me. Wholly inappropriate. I needed treatment and understanding. There was no real attempt to learn my unique and rare disease rather I was expected to fit into their paradigm.
For a "Skilled Nursing Facility", it felt more like a weigh station to death. I witnessed no interest in disability accommodation. The only public computer sat broken for nine months then was kept off to the side, immobile, inaccessible to most of the populace. The front desk had high counters inaccessible to the populace in wheelchairs. No easy coffee service for the wheelchair-bound, either. I mean, how difficult is it to make a low counter top to accommodate the wheelchair-bound?!
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