Mishandled, misunderstood, & marginalized. I cannot begin to count how many times I was hurt while under the care of Life Care Center of Federal Way. It was many times per day and we're not talking during physical and occupational therapy, where its part and parcel to what they do. Ignorance of the disease, ignorance of body mechanics, and a general attitude of lethargy with regard to learning about ALS, is what I noted. It was far easier to say a curt "sorry" and proceed as before. Efforts to educate caregivers was mostly like banging my head against the wall. The few who paid attention, deigned to do a little self-education, left this facility quickly with the exception of two nurses and two caregivers. Even the Director of Nursing, who allowed the ALS Association to provide education on what ALS is, didn't bother to attend. Neither did my main night nurse. The lack of training hurt me every time I had to have my Attends change, underwent a clothing change, ...
One Woman's ALS Journey