I may have a terminal illness but I have found joy in good friends visiting, cards, letters, balloons, flowers, email messages, facebook posts, caregiver's loving ministrations, tub baths, tender moments, ballads, ice cream, good food, junk food, a kind word, smiles, intuition, movement, Family, small efforts, gentle touches, good books, fellow sufferers, fundraising, advocacy, babies, old people, animals, meditation, movies, sitcoms, music, beauty, the past, dreams, colors, glitter, poetry, diversity, people, peace. Let's face it, this list Could continue on ad infinitum. What do you find joy in?
Fed up. Sick of hearing, "I'm sorry." Apologies don't erase the pain you inflict on me. You pull my pubic hair. Your nitrile gloves pull the hair from my head. Not once in a while but day in and day out. You turn me in a manner that suits you rather than in a manner that doesn't stress my body. Why won't you use the pad and sheet to turn me as one unit? Instead, you allow my body to twist as you hold me one-handed. How good you are at your job. What part of "my muscles are dying" don't you understand?
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