Skip to main content

Deanna Protocol - a Sourcing Nightmare

Out of Neurochondria until the 30th. Same day I should receive the Ubiquinol. Feel like it is none too soon. Keeping stocked up on my supplements is a freaking chore. Thanks to PatientsLikeMe.com I learned where to get Glutathione suppositories as I am stuck for a source for the IV. I hesitate at the expense ($150 + $30 shipping) but will pull the trigger today anyway.

Noted that www.WinningTheFight.com is unwilling to allow registrants to share sources which increases our burden. I know they don't want to cross the line into being accused of running a for-profit site but it's a very real dis-service to dangle this potential treatment before our eyes and not allow us to share info to locate the components.

It's appreciated that Deanna and Dr. Tedone choose to share this protocol with the world but they seem oblivious to our plight...how to find and have components administered. We are not all blessed with money and connections.
Labels:

Comments

Post a Comment

Popular posts from this blog

I Remember...

I remember catching fireflies,  putting them in a jar, as a girl of five. I picked pears off a tree that overhung an alleyway on my route home from school, then enjoyed the forbidden fruit. .I had a golden cat who chased a gray mouse through our living room sending my mother, 3-year old sister, and me screaming atop the sofa and chairs. We lived in a farmhouse and I watched Romper Room. A daddy longlegs skittered across my dirty kid legs as I teeter-tottered on a broken kitchen chair back. I played grocery store and laid out a bedroll for group nap time in preschool. We lived in an apartment attached to a bakery. My maternal grandparents visited and a photo was snapped. Grandma held Dawn and Grandpa held me. I held Grandpa's chin. Walking through the back of the flour-caked kitchen, I saw scrumptious pastries and colorful toys stuck in the cupcakes with my hungry kids eyes. We lived in a two-story apartment building next door to a large farmer's field.  That field was my...
3 comments
Read more

I Heart Trellis

Early in our relationship, though we were traditional nine-to-fivers, we were driven to create something together. At 36 and 43-years old, respectively, we were beyond creating babies. Besides, we came into our relationship with a perfect daughter each. Mine was 13 and his, twenty-three. Both blonde, bright, and beautiful and his came with a bonus, a baby! I came into the relationship with a condo that needed no work. He had a work-in-progress in the woods, actually two. We would spend our lives together redesigning and improving these "cabins in the woods". But, before that we took an afternoon cutting down young alders to use to make a trellis. Working together, we .wove supple, young branches into a nine-foot tall trellis with two hearts stacked one atop the other. We were in the gooey, sickeningly sweet, first months of love, forging a new life together. Here we are seventeen years later, separated by circumstance, through no fault of our own. I live in a hospice faci...
3 comments
Read more

Tuesday

Tuesday is shaping up to be my best day of the week. Every day holds the requisite eating, changing, television, and napping. But Tuesday, I got a glorious, hot bath in a handicap-accessible bathtub with my Angela and Lisa, reorganized my shower caddy with my Lisa, read "The White Album" by Joan Didion with my Lindsey, "supervised" doughnut-making and sampled same with my Sandra among others, and listened to Ryan Feng play classical piano. A new book fell into my lap today. Of course, I mean that figuratively. "Play It As It Lays" by Joan Didion was just laying on top of the informal Bailey Boushay House library cart, so I borrowed it. .Guess what we'll be reading? I feel very blessed!
2 comments
Read more