Skip to main content

Best Birthday Ever!

Started my day in a snit. Housekeeping cannot seem to get together on getting my clothing into my dresser drawers, instead packing shorts, tank tops, and pajamas into the closet on hangers. Those closets get so overstuffed the clothes end up in a pile on the floor where nobody bothers to pick them up. Then an unsuspecting aide arrives and asks me what I want to wear. I respond, "What do I have? " I get asked the same question as though I never answered and I blow a gasket.

Woe is me, nobody greeted me with a smile and a"Happy Birthday! " Nobody surprised me by cleaning out the closets nor did they lay out my Birthday clothing. I refuse help until my closets are clean. I've been waiting for weeks for my regular aide to catch on to my routine. God knows she can't understand my requests between my ALS accent and her Ethiopian one. But, today I make my stand and have the Resident Care Manager making order so I can make some logical decisions. A waste of her valuable time but I hope she passed on the instruction to my aide.

Soon I get a delivery from ProFlowers that the staffing agent graciously and expertly arranged. But she never said "Happy Birthday". Are you getting what a shitheel I'm being?  So I feel better that my daughter loves me but I think to myself, where are all the people that proclaim to love me here at the facility?

Next, I get a very special delivery from a great friend. A riot of balloons and a magnificent bouquet of yellow roses, sunflowers, and lillies hand-delivered personally and noisily. Now the cat is outta the bag! It's my Birthday! My friend must beg off for dinner (his son-in-law is being deployed and his wife expects him to be there. Well yeah! Dude, you gotta be there and you wanna be there! I am now so over myself!!!

.So I'm snapped back to reality once more.No more "Woe is me". There are more important issues demanding people's attention. My day goes much better now that I have apologized for being a pain. The Birthday wishes are humbly received as they should be. Nobody owes me.

My husband arrived early to take me to the dinner as we had planned. We were to meet his daughter, Angelique, as well as my parents, and sisters. What I got was practically the whole damn family. Angelique, her fiance', Shawn, his daughter, Lizzy, the grandson, Brandon, my mom and dad, my sister, Renee and boyfriend, Dan, my sister, Dawn, and husband, Mark, my sister's best friend, Bev; my husband's brother, Stephen, and his wife, Emily; his brother, David and his wife, Joyce; his sister, Liz; and one of my best friends, Judy Gale. I guess that makes eighteen of us! And by far and away the largest birthday party I've had as an adult that wasn't a drunkfest.

I was floored! What an outpouring of love and support. I got stacks of cards, handfuls of balloons, flowers and gifts, many hugs and kisses, lots of laughs, and an embarrassing rendition of the birthday song and free ice cream. We also had birthday cake, cupcakes, Trophy cupcakes (which are the best cupcakes ever). I could scarsely ask for more...Except the right to go home.

Comments

Popular posts from this blog

I Remember...

I remember catching fireflies,  putting them in a jar, as a girl of five. I picked pears off a tree that overhung an alleyway on my route home from school, then enjoyed the forbidden fruit. .I had a golden cat who chased a gray mouse through our living room sending my mother, 3-year old sister, and me screaming atop the sofa and chairs. We lived in a farmhouse and I watched Romper Room. A daddy longlegs skittered across my dirty kid legs as I teeter-tottered on a broken kitchen chair back. I played grocery store and laid out a bedroll for group nap time in preschool. We lived in an apartment attached to a bakery. My maternal grandparents visited and a photo was snapped. Grandma held Dawn and Grandpa held me. I held Grandpa's chin. Walking through the back of the flour-caked kitchen, I saw scrumptious pastries and colorful toys stuck in the cupcakes with my hungry kids eyes. We lived in a two-story apartment building next door to a large farmer's field.  That field was my...

You're Not You...Me, Too!

1 Wow! Spot on...In so many ways.  Granted I wasn't in the the same socio-economic circumstance, and neither do I play piano but I was passionate about knitting and I lost the ability to engage in my passion practically from the onset of the ALS. Symptoms first manifested in my right hand as well. I was big on juicing, supplements, and did not worry about fats nor calories. But ALS advanced relentlessly. I hired friends as caregivers and had to bear the humiliation of being toileted by them.One of the worst hurdles for me was allowing a long time male friend wipe me following a toilet. My mother, stepfather, and sister all toileted me as well. Of course, my husband had to attend to all of my most delicate needs, showering, dressing and make-up application. I could really relate to Hillary Swank's character, Kate, in all circumstances except, she chose not to use the bipap (breathing apparatus).  I don't really get why somebody would opt out of a non-invasive solution to...

Kate

I think about my friend, Kate Struby, who died from this horrible disease in 2013. She lived here at Bailey Boushay House before I did. I reached out to Kate online through FaceBook because I loved her photograph with her head thrown back in laughter. I also loved her posts. I guess I just loved her spirit. I got to finally meet her one month before she died. I happened to be at the University of Washington Medical Center for my quarterly appointment when I saw her FaceBook post. She was awake and in the medical ICU. She was a mere few floors down. I would not be stopped. Relativeor no, I would meet my FaceBook friend. Thank God I did. I rolled into the room to find a beautiful, ethere.al woman flanked by two friends. Although it was an impromtu visit, she said she knew me immediately.I was in awe of her with her fiery spirit despite the ravages of our shared disease. She, unable to lift even a finger, lifted my spirit.