Raised some Hell today. Do not f**k with my food.
I thought I was dealing with enlightened, educated, patient-centered people at this care facility. I am in control of my mental faculties and I've demonstrated that I am willing to modify my diet to keep safe, within the limitations of the declines I'm experiencing, as a result of ALS. I understand that any misstep on my part could result in my death. I accept that and am willing to absolve the facility of any responsibility. Therefore, I believe I should be in control of my preferred diet. I'm on advanced dysphasia as I was coerced to "try" it. Now that I've experienced and found it to be unsafe for my "brand" of dysphasia, I wish to revert back to the regular diet menu. However, the management denied me that basic human right and dignity.
The following is my argument as to why their idea of Advanced Dysphasia Menu is actually more unsafe:
I thought I was dealing with enlightened, educated, patient-centered people at this care facility. I am in control of my mental faculties and I've demonstrated that I am willing to modify my diet to keep safe, within the limitations of the declines I'm experiencing, as a result of ALS. I understand that any misstep on my part could result in my death. I accept that and am willing to absolve the facility of any responsibility. Therefore, I believe I should be in control of my preferred diet. I'm on advanced dysphasia as I was coerced to "try" it. Now that I've experienced and found it to be unsafe for my "brand" of dysphasia, I wish to revert back to the regular diet menu. However, the management denied me that basic human right and dignity.
The following is my argument as to why their idea of Advanced Dysphasia Menu is actually more unsafe:
"Your advanced dysphasia menu is unsafe. Jello, lettuce, rice, and mixed consistency items should not be offered. Cut up toast and breads dry out and do not lend themselves to ease of applying butter and jam and crust removal for cohesion. No consistency in preparation of commonly-offered dishes has resulted in ordering items too dry to eat. Taking away one salad item provides no purpose. It prevents me from ordering foods safe to eat like the beets and goat cheese. Additionally, grits and malt-o-meal, are too fine-grained, oatmeal is safer. Hard-boiled eggs are chokers. Also fresh orange wedges aren't safe but canned Mandarin oranges are."
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