I have noticed that as I have become less able to communicate, the more acceptable it is to assume my mental incapacity. Even though I reside in a prestigious nursing facility, I am falling victim to the notion that I am not reasonable or prone to fits of temper for "no reason at all". These prejudices, that is what they are, are harmful to the ALS patient. They leave us grievously wounded, susceptible to physical harms, like pneumonia, choking, death, etc; as well as mental harm, like grief, despair, depression, and death of the spirit.
People are reading my blog! I cannot express my gratitude enough. My heart is soaring! Before I got ALS, it was a minor interest amongst many varied interests. Today, I am unable to physically participate in many of my prior interests, like motorcycling, photography, knitting and other handicrafts, hiking, traveling, painting, drawing, going to the gym, working in the garden, doing housework, canning, and cooking gourmet or ethnic foods. Therefore, I am more focused on the ones that are most accessible to me, such as reading via audiobook or e-book, television, movies, meditation, music appreciation, and writing. Like the blind man who's sense of hearing and smell is heightened, I'd like to think my crippled body has made me more attuned to things more on the spiritual and sensual level. Initially, when some members of my family read my blog, they chose to focus on what they viewed as negative. The feedback I got was harsh and personally critical. .I was told that I was ...
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