Skip to main content

Mounting Frustration

Following another lukewarm, under-spiced meal of chili, really a mere suggestion of chili, my husband wanted to know what I wanted to eat from the local Italian joint. I indicated the beef bracioli. "Bracioli is usually cooking long and very tender. Ask them.", I typed, deleting errant keystrokes and retyping. He kept steering me to spaghetti and meatballs, forcing me to defend my choice. Spaghetti gets hung up in my throat, choking me. Then he goes on about the veal parmesan. All the while I'm trying to speak through the Tobii, fighting it to "see" me.

By then, I'm getting frazzled. Then he tosses out that I'm purposely hiding the top line of my text on Tobii, a defect that I have no control over, that frustrates me to no end!

I lost it! Screaming my wordless, soundless frustration, tears streaming down my face, blood pressure erupting, my impotent rage trapped within my useless ALS-ravaged husk of a body.

Comments

Popular posts from this blog

I Remember...

I remember catching fireflies,  putting them in a jar, as a girl of five. I picked pears off a tree that overhung an alleyway on my route home from school, then enjoyed the forbidden fruit. .I had a golden cat who chased a gray mouse through our living room sending my mother, 3-year old sister, and me screaming atop the sofa and chairs. We lived in a farmhouse and I watched Romper Room. A daddy longlegs skittered across my dirty kid legs as I teeter-tottered on a broken kitchen chair back. I played grocery store and laid out a bedroll for group nap time in preschool. We lived in an apartment attached to a bakery. My maternal grandparents visited and a photo was snapped. Grandma held Dawn and Grandpa held me. I held Grandpa's chin. Walking through the back of the flour-caked kitchen, I saw scrumptious pastries and colorful toys stuck in the cupcakes with my hungry kids eyes. We lived in a two-story apartment building next door to a large farmer's field.  That field was my...

Gratitude For Reading

People are reading my blog! I cannot express my gratitude enough. My heart is soaring! Before I got ALS, it was a minor interest amongst many varied interests. Today, I am unable to physically participate in many of my prior interests, like motorcycling, photography, knitting and other handicrafts, hiking, traveling, painting, drawing, going to the gym, working in the garden, doing housework, canning, and cooking gourmet or ethnic foods. Therefore, I am more focused on the ones that are most accessible to me, such as reading via audiobook or e-book, television, movies, meditation, music appreciation, and writing. Like the blind man who's sense of hearing and smell is heightened, I'd like to think my crippled body has made me more attuned to things more on the spiritual and sensual level. Initially, when some members of my family read my blog, they chose to focus on what they viewed as negative. The feedback I got was harsh and personally critical. .I was told that I was ...

Creep

  Have you ever used the internet to look up an old flame? How about an old arch-enemy? Did you have the intention to reconnect? Me neither.