Skip to main content

Disrespected, Again...

It's 10 pm, I've accomplished nothing to speak of. I watched one movi, "The One I Love", a Twilight Zone-esque story on a couple trying to reconcile. And, one television show, "Running Wild with Bear Grylles" guest starring Channing Tatum. OMG!!! And, I ate some dinner. Tonight was chicken gumbo, chili, cornbread, oatmeal cookies and ice cream.

Not much of a day. Nope. I was looking forward to my husband's visit but when he called at 5 pm, he mentioned that he was in Ritzville (by Spokane) working on his trailer with Darryl (the other jerk that took my cruise without me).  I do not begrudge my husband having a life away from me. However, as I keep telling him, I don't appreciate being purposefully left out of loop and disrespected by being left waiting for his disrespectful ass. Any questions?


Labels:
Location: 2720 East Madison Street, Seattle, WA 98112, USA

Comments

  1. UnknownJuly 12, 2015 at 11:19 AM

    Hi, really like your blog, especially how honest you area about the realities of ALS. Sometimes the ALS warrior becomes ALS angel nauseates me but I get that it is important for many dealing with ALS. I see it as eating a bigger crap sandwich today than I had yesterday, all the time knowing there is a bigger one waiting for me tomorrow!
    All the best
    Roch
    (AKA Tommy Maker from PLM)

    ReplyDelete
  2. UnknownJuly 13, 2015 at 2:08 AM

    Roch, I remember you from PLM! How goes the war on your front? I appreciate your comments. Sometimes I feel like I'm shouting into the wind. But I need this outlet to maintain sanity (if I ever had any). I couldn't bear another pious ALS is a wonderful club blog, either. My experience has been horrendous and hilarious and everything in between. I found that family did not have my back and our government doesn't give a shit about us. Still, I have to laugh else I'll cry. Keep in touch!
    Tina Roch, I remember you from PLM! How goes the war on your front? I appreciate your comments. Sometimes I feel like I'm shouting into the wind. But I need this outlet to maintain sanity (if I ever had any). I couldn't bear another pious ALS is a wonderful club blog, either. My experience has been horrendous and hilarious and everything in between. I found that family did not have my back and our government doesn't give a shit about us. Still, I have to laugh else I'll cry. Keep in touch!
    Tina

    ReplyDelete

Post a Comment

Popular posts from this blog

Kate

I think about my friend, Kate Struby, who died from this horrible disease in 2013. She lived here at Bailey Boushay House before I did. I reached out to Kate online through FaceBook because I loved her photograph with her head thrown back in laughter. I also loved her posts. I guess I just loved her spirit. I got to finally meet her one month before she died. I happened to be at the University of Washington Medical Center for my quarterly appointment when I saw her FaceBook post. She was awake and in the medical ICU. She was a mere few floors down. I would not be stopped. Relativeor no, I would meet my FaceBook friend. Thank God I did. I rolled into the room to find a beautiful, ethere.al woman flanked by two friends. Although it was an impromtu visit, she said she knew me immediately.I was in awe of her with her fiery spirit despite the ravages of our shared disease. She, unable to lift even a finger, lifted my spirit.
2 comments
Read more

Gratitude For Reading

People are reading my blog! I cannot express my gratitude enough. My heart is soaring! Before I got ALS, it was a minor interest amongst many varied interests. Today, I am unable to physically participate in many of my prior interests, like motorcycling, photography, knitting and other handicrafts, hiking, traveling, painting, drawing, going to the gym, working in the garden, doing housework, canning, and cooking gourmet or ethnic foods. Therefore, I am more focused on the ones that are most accessible to me, such as reading via audiobook or e-book, television, movies, meditation, music appreciation, and writing. Like the blind man who's sense of hearing and smell is heightened, I'd like to think my crippled body has made me more attuned to things more on the spiritual and sensual level. Initially, when some members of my family read my blog, they chose to focus on what they viewed as negative. The feedback I got was harsh and personally critical. .I was told that I was ...
4 comments
Read more